9.50. EULAR Sjögren’s Syndrome Patient Reported Index (ESSPRI)

Warning

(¶+) Reproduction of this task/scale is not permitted (or such permission is not clear). This CamCOPS task is a data collection tool only, with no scale text (unless configured locally to use externally provided text that the hosting institution is legally permitted to use). Use it only in conjunction with a licensed copy of the original task. If your institution is entitled to use the task, you may install an add-on XML file on your server containing the required strings, to make the task fully functional, but you must provide this XML file and its contents yourself (it is outside the scope of CamCOPS).

Three numerical rating scales each rated 0-10. The overall score is the mean score of the three scales.

EULAR is the European League Against Rheumatism: https://www.eular.org/.

9.50.1. Intellectual property rights

As per the Powerpoint source via http://oml.eular.org/ (see below):

Copyright © 2015 by BMJ Publishing Group Ltd and European League Against Rheumatism.

Accordingly, implemented as a skeleton task as above.

Possibly more open, however; http://oml.eular.org/faq.cfm notes that “PROs which are copyrighted are not presented in full text version” [sic] and the ESSPRI is presented in full text (as below).

9.50.2. History

  • Seror R, Ravaud P, Mariette X, Bootsma H, Theander E, Hansen A, Ramos-Casals M, Dörner T, Bombardieri S, Hachulla E, Brun JG, Kruize AA, Praprotnik S, Tomsic M, Gottenberg JE, Devauchelle V, Devita S, Vollenweider C, Mandl T, Tzioufas A, Carsons S, Saraux A, Sutcliffe N, Vitali C, Bowman SJ; EULAR Sjögren’s Task Force (2011). EULAR Sjögren’s Syndrome Patient Reported Index (ESSPRI): development of a consensus patient index for primary Sjögren’s syndrome. Annals of the Rheumatic Diseases 70: 968-972. https://www.ncbi.nlm.nih.gov/pubmed/21345815
  • Seror R, et al. (2015). Validation of EULAR primary Sjögren’s syndrome disease activity (ESSDAI) and patient indexes (ESSPRI). Ann Rheum Dis. 74(5): 859-866. https://doi.org/10.1136/annrheumdis-2013-204615 https://www.ncbi.nlm.nih.gov/pubmed/24442883