10.56. EuroQol 5-Dimension, 5-Level Health Scale (EQ-5D-5L)¶
Warning
(¶+) Reproduction of this task/scale is not permitted (or such permission is not clear). This CamCOPS task is a data collection tool only, with no scale text (unless configured locally to use externally provided text that the hosting institution is legally permitted to use). Use it only in conjunction with a licensed copy of the original task. If your institution is entitled to use the task, you may install an add-on XML file on your server containing the required strings, to make the task fully functional, but you must provide this XML file and its contents yourself (it is outside the scope of CamCOPS).
A descriptive system comprising five dimensions: mobility, self-care, usual activities, pain/discomfort and anxiety/depression. Each dimension has 5 levels: no problems, slight problems, moderate problems, severe problems and extreme problems. The second task component is a visual scale wherein the patient is asked to rate their health on a scale of 0 to 100.
EQ-5D-5L evolved from EQ-5D-3L, as the five level classifier provided greater discriminative ability and more power to detect differences between groups.
10.56.1. History and guide¶
Brooks R (1996). EuroQol: The current state of play. Health Policy. 37: 53–72. doi: 10.1016/0168-8510(96)00822-6. PMID 10158943.
Pickard AS et al. (2007). Psychometric comparison of the standard EQ-5D to a 5 level version in cancer patients. Med Care 45: 259–263 PMID 17304084.
Herdman M et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Research: 1727–1736. PMID 21479777.
Scoring the EQ-5D-5L from EQ-5D-3L:
Ben van Hout et al. (2012) Interim Scoring for the EQ-5D-5L: Mapping the EQ-5D-5L to EQ-5D-3L Value Sets Value in Health, Volume 15, Issue 5: 708-715 PMID 22867780.
More on scoring:
10.56.2. Source¶
10.56.3. Intellectual property rights¶
As per https://euroqol.org/support/how-to-obtain-eq-5d/ (accessed 2018-10-25):
Copyright
Please note that without the prior written consent of the EuroQol Office, you are not
permitted to i.e. use, reproduce, alter, amend, convert, translate, publish or make
available in whatever way (digital, hard-copy etc.) the EQ-5D and related proprietary
materials.
The EuroQol Research Foundation stresses that any and all copyrights in the EQ-5D,
its (digital) representations, and its translations exclusively vest in the
EuroQol Research Foundation. EQ-5D™ is a trade mark of the EuroQol Research Foundation.
As a result, the EQ-5D-5L scale itself is not included in CamCOPS, though its content may be added if you have the necessary permissions and scale, as above.
Update, 28 Mar 2022 (email to a subscriber, footnotes added for hyperlinks and Internet Archive versions used for URLs):
EuroQol | 28 Mar 2022 View online [1]
Dear [XXX],
As indicated in our email from early January this year, the EuroQol Research
Foundation is pleased to announce that from 6 April 2022, the current
offering of three digital formats of EQ-5D (Smartphone/PDA, Tablet, and
Laptop/Desktop) will be replaced by one new digital format that can be used
on any digital device. From this date onwards, you can request the new
digital formats of EQ-5D via the online registration form. Requested EQ-5D
versions will be delivered via the new EuroQol Customer Portal.
With the introduction of the new digital EQ-5D format, an updated version of
the User License Policy will come into effect as of 6 April 2022 – see here
[2].
* For commercial customers, a new license fee structure is introduced for
the new digital EQ-5D format.
* For non-commercial customers interested in collecting data digitally on an
unsupported platform, the Fast Track – Digital registration route is
introduced; see here [3] for more information.
As part of the introduction of the new digital format, we are rolling out a
library of EQ-5D Representations, which consists of EuroQol Office–approved
EQ-5D screenshots of the new digital EQ-5D versions. The library consists of
EQ-5D-3L, EQ-5D-5L, and EQ-5D-Y Representations of all available languages.
Representations from this library will be made available to registered
customers for all requested EQ-5D versions and languages via our EuroQol
Customer Portal, together with the requested EQ-5D labels and EuroQol’s
Digital Representation Design Guidelines.
The EuroQol Office–approved Representations will enable customers and
vendors to check that their digital implementation of EQ-5D conforms to
EuroQol’s Digital Representation Design Guidelines. Moreover, as we are
providing these Representations for all available languages, customers can
also verify the correct placement of all EQ-5D labels. This means that from
6 April 2022, customers will be solely responsible for checking the
correctness of all digital EQ-5D implementations. Screenshot review by the
EuroQol Office team will no longer be mandatory. However, as a service, the
Office team will continue to do screenshot reviews on request.
Lastly, the EuroQol Research Foundation will continue with making EQ-5D
available free for non-commercial use, after registration. As screenshot
review is no longer required, a screenshot review fee will no longer be
charged to non-commercial customers who collect data on unsupported digital
platforms (i.e. on platforms other than REDCap, LimeSurvey, Qualtrics, or
Castor EDC); see here [3] for more information.
For more information and FAQs, please see here [3].
If you have any questions, please contact the EuroQol Office at
digitaldatacollection@euroqol.org.
Best wishes,
Bernhard Slaap. PhD
Executive Director
EuroQol Research Foundation
[1] https://mailchi.mp/euroqol/switch-to-a-universal-digital-format-14921174 or https://web.archive.org/web/20240328124540/https://mailchi.mp/euroqol/switch-to-a-universal-digital-format-14921174
[3] https://web.archive.org/web/20220517170036/https://euroqol.org/support/digital-data-collection/