8. Why isn’t task X in CamCOPS?

Either because it hasn’t been implemented, or because it would not be permissible for copyright reasons.

Tasks rejected or not included for copyright reasons include:

8.1. Addenbrooke’s Cognitive Examination (ACE-R) (prior to ACE-III)

Disputed ― elements are certainly public domain, but it also includes elements of the MMSE. Replaced by the ACE-III.

8.2. Altman Self-Rating Mania Scale (ASRM)

Copyright Elsevier (personal communication, Elsevier to Rudolf Cardinal via RightsLink, 2013-03-19). Requires a license fee.

8.3. Barnes Akathisia Rating Scale (BARS)

Copyright Royal College of Psychiatrists. Permission refused (personal communication, RCPsych to Rudolf Cardinal, 2013-07-31).

8.4. Bush–Francis Catatonia Rating Scale (BFRCS) and Catatonia Screening Instrument (CSI)

Copyright John Wiley and Sons. Permission refused (personal communication, Wiley to Rudolf Cardinal, 2013-04-09).

8.5. Epworth Sleepiness Scale (ESS)

Copyright Murray Johns. Use by individuals (including clinicians and researchers) free of charge. Other use (e.g. hospitals, universities, commercial uses) requires a licence fee.

8.6. Edinburgh Postnatal Depression Scale (EPDS)

Copyright Royal College of Psychiatrists.

Ignore this (say the RCPsych): “Users may reproduce the scale without further permission providing they respect copyright by quoting the names of the authors, the title and the source of the paper in all reproduced copies.” (Cox et al. 1987.)

Instead, use this: “© 1987 The Royal College of Psychiatrists. The Edinburgh Postnatal Depression Scale may be photocopied by individual researchers or clinicians for their own use without seeking permission from the publishers. The scale must be copied in full and all copies must acknowledge the following source: Cox, J.L., Holden, J.M., & Sagovsky, R. (1987). Detection of postnatal depression. Development of the 10-item Edinburgh Postnatal Depression Scale. British Journal of Psychiatry, 150, 782-786. Written permission must be obtained from the Royal College of Psychiatrists for copying and distribution to others or for republication (in print, online or by any other medium).”

Permission refused (personal communication, RCPsych to Rudolf Cardinal, 2013-08-06).

  • Original: Cox JL, Holden JM, and Sagovsky R (1987). Detection of postnatal depression: Development of the 10-item Edinburgh Postnatal Depression Scale. British Journal of Psychiatry 150:782–786, http://www.ncbi.nlm.nih.gov/pubmed/3651732

8.7. EQ-5D

Copyright EuroQol Research Foundation. Requires a license fee.

8.8. Frontal Assessment Battery

Copyright © 2000 by AAN Enterprises, Inc. “The AAN do not allow there [sic] content on mobile devices.” (Personal communication, Wolters Kluwer Rights and Permissions to Rudolf Cardinal, 2013-08-01.

  • Original: Dubois et al. (2000), http://www.ncbi.nlm.nih.gov/pubmed/11113214.
  • Low scores are worse. In patients with early dementia (MMSE > 24), a cutoff score of FAB ≤ 12 [1] can differentiate frontotemporal dementia from Alzheimer’s disease (sensitivity for FTD 77%, specificy 87%; Slachevksy et al. 2004, www.ncbi.nlm.nih.gov/pubmed/15262742).
  • AAN = American Academy of Neurology. Neurology journal published by LWW and permissions requests directed to them.

8.9. Glasgow Antipsychotic Side-effect Scale (GASS)

Copyright SAGE Publications Ltd. Commercial, fee payable (personal communication, SAGE to Rudolf Cardinal, 2013-04-19, 2013-04-25; ongoing fees would apply).

8.10. Launay–Slade Hallucination Scale (LSHS-R)

Copyright Elsevier (personal communication, Elsevier to Rudolf Cardinal via RightsLink, 2013-04-10), fee payable. Requires a license fee. Derivative tasks presumed unsafe as a result.

  • Original 12-item yes/no scale: Launay & Slade (1981), The measurement of hallucinatory predisposition in male and female prisoners, Pers Individ Dif, 2 (1981), pp. 221–234.
  • LSHS-A and LSHS-B: Revised 12-item versions using 0-5 ratings for each: R.P. Bentall, P.D. Slade (1985), Reliability of a scale measuring disposition towards hallucination: a brief report. Pers Individ Dif, 6 (1985), pp. 527–529.
  • History given in Larøi et al. (2004), http://www.ncbi.nlm.nih.gov/pubmed/14969776.
  • Revised, 16-then-14-item version: Morrison et al. (2000), http://www.ncbi.nlm.nih.gov/pubmed/10789029.
  • Revised, 16-item version: Larøi F & Van Der Linden M (2005), Nonclinical participants’ reports of hallucinatory experiences. Canadian Journal of Behavioural Science, Vol 37(1), Jan 2005, 33-43.

8.11. Liverpool University Neuroleptic Side Effect Rating Scale (LUNSERS)

Copyright University of Manchester. Permission refused (personal communication, University of Manchester Intellectual Property [UMIP] to Rudolf Cardinal, 2013-04-19).

8.12. Mini-Mental State Examination (MMSE)

Copyright MiniMental / Psychological Assessment Resources (PAR). Commercial; see Newman & Feldman (2011) NEJM 365:2247, http://www.nejm.org/doi/full/10.1056/NEJMp1110652

8.13. Montgomery–Åsberg Depression Rating Scale (MADRS)

Copyright Royal College of Psychiatrists. Permission refused (personal communication, RCPsych to Rudolf Cardinal, 2013-07-31).

8.14. PSYCHLOPS (Psychological Outcome Profiles)

Copyright Department of Primary Care and Public Health Sciences, King’s College London. “Please note that the one-off fee for PSYCHLOPS is on a sliding scale depending on the number of service users; it is available free to all researchers.”

8.15. Simpson–Angus Extrapyramidal Side Effects Scale (SAS)

Copyright John Wiley and Sons. Permission refused (personal communication, Wiley to Rudolf Cardinal, 2013-04-09).

8.16. Stanford Integrated Psychosocial Assessment for Transplantation (SIPAT)

Copyright José R. Maldonado, for Stanford University. SIPAT distribution restrictions incompatible with open-source distribution (personal communication, José Maldonado to Rudolf Cardinal, 2013-08-01).

Footnotes

[1]I think: the phrase is “a cutoff of 12”, which is somewhat ambiguous!