10. Why isn’t task X in CamCOPS?

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Either because it hasn’t been implemented, or because it would not be permissible for copyright reasons.

Tasks rejected or not included for copyright reasons include:

10.1. Addenbrooke’s Cognitive Examination (ACE-R) (prior to ACE-III)

Disputed ― elements are certainly public domain, but it also includes elements of the MMSE. Replaced by the ACE-III.

10.2. Altman Self-Rating Mania Scale (ASRM)

Copyright Elsevier (personal communication, Elsevier to Rudolf Cardinal via RightsLink, 2013-03-19). Requires a license fee.

10.3. Barnes Akathisia Rating Scale (BARS)

Copyright Royal College of Psychiatrists. Permission refused (personal communication, RCPsych to Rudolf Cardinal, 2013-07-31).

10.4. Bush–Francis Catatonia Rating Scale (BFRCS) and Catatonia Screening Instrument (CSI)

Copyright John Wiley and Sons. Permission refused (personal communication, Wiley to Rudolf Cardinal, 2013-04-09).

10.5. Epworth Sleepiness Scale (ESS)

Copyright Murray Johns. Use by individuals (including clinicians and researchers) free of charge. Other use (e.g. hospitals, universities, commercial uses) requires a licence fee.

10.6. EQ-5D

Copyright EuroQol Research Foundation. Requires a license fee.

10.7. Frontal Assessment Battery

Copyright © 2000 by AAN Enterprises, Inc. “The AAN do not allow there [sic] content on mobile devices.” (Personal communication, Wolters Kluwer Rights and Permissions to Rudolf Cardinal, 2013-08-01.

  • Original: Dubois et al. (2000), http://www.ncbi.nlm.nih.gov/pubmed/11113214.
  • Low scores are worse. In patients with early dementia (MMSE > 24), a cutoff score of FAB ≤ 12 [1] can differentiate frontotemporal dementia from Alzheimer’s disease (sensitivity for FTD 77%, specificy 87%; Slachevksy et al. 2004, www.ncbi.nlm.nih.gov/pubmed/15262742).
  • AAN = American Academy of Neurology. Neurology journal published by LWW and permissions requests directed to them.

10.8. Glasgow Antipsychotic Side-effect Scale (GASS)

Copyright SAGE Publications Ltd. Commercial, fee payable (personal communication, SAGE to Rudolf Cardinal, 2013-04-19, 2013-04-25; ongoing fees would apply).

10.9. Launay–Slade Hallucination Scale (LSHS-R)

Copyright Elsevier (personal communication, Elsevier to Rudolf Cardinal via RightsLink, 2013-04-10), fee payable. Requires a license fee. Derivative tasks presumed unsafe as a result.

  • Original 12-item yes/no scale: Launay & Slade (1981), The measurement of hallucinatory predisposition in male and female prisoners, Pers Individ Dif, 2 (1981), pp. 221–234.
  • LSHS-A and LSHS-B: Revised 12-item versions using 0-5 ratings for each: R.P. Bentall, P.D. Slade (1985), Reliability of a scale measuring disposition towards hallucination: a brief report. Pers Individ Dif, 6 (1985), pp. 527–529.
  • History given in Larøi et al. (2004), http://www.ncbi.nlm.nih.gov/pubmed/14969776.
  • Revised, 16-then-14-item version: Morrison et al. (2000), http://www.ncbi.nlm.nih.gov/pubmed/10789029.
  • Revised, 16-item version: Larøi F & Van Der Linden M (2005), Nonclinical participants’ reports of hallucinatory experiences. Canadian Journal of Behavioural Science, Vol 37(1), Jan 2005, 33-43.

10.10. Liverpool University Neuroleptic Side Effect Rating Scale (LUNSERS)

Copyright University of Manchester. Permission refused (personal communication, University of Manchester Intellectual Property [UMIP] to Rudolf Cardinal, 2013-04-19).

10.11. Mini-Mental State Examination (MMSE)

Copyright MiniMental / Psychological Assessment Resources (PAR). Commercial; see Newman & Feldman (2011) NEJM 365:2247, http://www.nejm.org/doi/full/10.1056/NEJMp1110652

10.12. Montgomery–Åsberg Depression Rating Scale (MADRS)

Copyright Royal College of Psychiatrists. Permission refused (personal communication, RCPsych to Rudolf Cardinal, 2013-07-31).

10.13. PSYCHLOPS (Psychological Outcome Profiles)

Copyright Department of Primary Care and Public Health Sciences, King’s College London. “Please note that the one-off fee for PSYCHLOPS is on a sliding scale depending on the number of service users; it is available free to all researchers.”

10.14. Simpson–Angus Extrapyramidal Side Effects Scale (SAS)

Copyright John Wiley and Sons. Permission refused (personal communication, Wiley to Rudolf Cardinal, 2013-04-09).

10.15. Stanford Integrated Psychosocial Assessment for Transplantation (SIPAT)

Copyright José R. Maldonado, for Stanford University. SIPAT distribution restrictions incompatible with open-source distribution (personal communication, José Maldonado to Rudolf Cardinal, 2013-08-01).


Footnotes

[1]I think: the phrase is “a cutoff of 12”, which is somewhat ambiguous!