..  docs/source/tasks/esspri.rst

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    Created by Rudolf Cardinal (rnc1001@cam.ac.uk).
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.. _esspri:

EULAR Sjögren’s Syndrome Patient Reported Index (ESSPRI)
--------------------------------------------------------

.. include:: include_data_collection_plus_local_upgrade.rst

Three numerical rating scales each rated 0-10. The overall score is the mean
score of the three scales.

EULAR is the European League Against Rheumatism: https://www.eular.org/.


Intellectual property rights
~~~~~~~~~~~~~~~~~~~~~~~~~~~~

As per the Powerpoint source via http://oml.eular.org/ (see below):

    Copyright © 2015 by BMJ Publishing Group Ltd and European League Against
    Rheumatism.

Accordingly, implemented as a skeleton task as above.

Possibly more open, however; http://oml.eular.org/faq.cfm notes that "PROs
which are copyrighted are not presented in full text version" [sic] and the
ESSPRI is presented in full text (as below).


History
~~~~~~~

- Seror R, Ravaud P, Mariette X, Bootsma H, Theander E, Hansen A, Ramos-Casals
  M, Dörner T, Bombardieri S, Hachulla E, Brun JG, Kruize AA, Praprotnik S,
  Tomsic M, Gottenberg JE, Devauchelle V, Devita S, Vollenweider C, Mandl T,
  Tzioufas A, Carsons S, Saraux A, Sutcliffe N, Vitali C, Bowman SJ; EULAR
  Sjögren's Task Force (2011).
  EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI): development of a
  consensus patient index for primary Sjögren's syndrome.
  *Annals of the Rheumatic Diseases* 70: 968-972.
  https://www.ncbi.nlm.nih.gov/pubmed/21345815

- Seror R, et al. (2015).
  Validation of EULAR primary Sjögren's syndrome disease activity (ESSDAI) and
  patient indexes (ESSPRI).
  *Ann Rheum Dis.* 74(5): 859-866.
  https://doi.org/10.1136/annrheumdis-2013-204615
  https://www.ncbi.nlm.nih.gov/pubmed/24442883


Source
~~~~~~

- http://oml.eular.org/index.cfm
- http://oml.eular.org/oml_search_results_details.cfm?id=156&action=All%20information
- http://oml.eular.org/sysModules/obxOML/docs/id_156/ESSPRI-PRO.pptx