.. docs/source/tasks/eq5d5l.rst .. Copyright (C) 2012, University of Cambridge, Department of Psychiatry. Created by Rudolf Cardinal (rnc1001@cam.ac.uk). . This file is part of CamCOPS. . CamCOPS is free software: you can redistribute it and/or modify it under the terms of the GNU General Public License as published by the Free Software Foundation, either version 3 of the License, or (at your option) any later version. . CamCOPS is distributed in the hope that it will be useful, but WITHOUT ANY WARRANTY; without even the implied warranty of MERCHANTABILITY or FITNESS FOR A PARTICULAR PURPOSE. See the GNU General Public License for more details. . You should have received a copy of the GNU General Public License along with CamCOPS. If not, see . .. _eq5d5l: EuroQol 5-Dimension, 5-Level Health Scale (EQ-5D-5L) ---------------------------------------------------- .. include:: include_data_collection_plus_local_upgrade.rst A descriptive system comprising five dimensions: mobility, self-care, usual activities, pain/discomfort and anxiety/depression. Each dimension has 5 levels: no problems, slight problems, moderate problems, severe problems and extreme problems. The second task component is a visual scale wherein the patient is asked to rate their health on a scale of 0 to 100. EQ-5D-5L evolved from EQ-5D-3L, as the five level classifier provided greater discriminative ability and more power to detect differences between groups. History and guide ~~~~~~~~~~~~~~~~~ - Brooks R (1996). EuroQol: The current state of play. Health Policy. 37: 53–72. doi: 10.1016/0168-8510(96)00822-6. PMID `10158943 `_. - Pickard AS et al. (2007). Psychometric comparison of the standard EQ-5D to a 5 level version in cancer patients. Med Care 45: 259–263 PMID `17304084 `_. - Herdman M et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Research: 1727–1736. PMID `21479777 `_. Scoring the EQ-5D-5L from EQ-5D-3L: - Ben van Hout et al. (2012) Interim Scoring for the EQ-5D-5L: Mapping the EQ-5D-5L to EQ-5D-3L Value Sets Value in Health, Volume 15, Issue 5: 708-715 PMID `22867780 `_. More on scoring: - https://en.wikipedia.org/wiki/EQ-5D#Valuation_process Source ~~~~~~ See https://euroqol.org/support/how-to-obtain-eq-5d/. Intellectual property rights ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ As per https://euroqol.org/support/how-to-obtain-eq-5d/ (accessed 2018-10-25): .. code-block:: none Copyright Please note that without the prior written consent of the EuroQol Office, you are not permitted to i.e. use, reproduce, alter, amend, convert, translate, publish or make available in whatever way (digital, hard-copy etc.) the EQ-5D and related proprietary materials. The EuroQol Research Foundation stresses that any and all copyrights in the EQ-5D, its (digital) representations, and its translations exclusively vest in the EuroQol Research Foundation. EQ-5D™ is a trade mark of the EuroQol Research Foundation. As a result, the EQ-5D-5L scale itself is **not** included in CamCOPS, though its content may be added if you have the necessary permissions and scale, as above. Update, 28 Mar 2022 (email to a subscriber, footnotes added for hyperlinks and Internet Archive versions used for URLs): .. code-block:: none EuroQol | 28 Mar 2022 View online [1] Dear [XXX], As indicated in our email from early January this year, the EuroQol Research Foundation is pleased to announce that from 6 April 2022, the current offering of three digital formats of EQ-5D (Smartphone/PDA, Tablet, and Laptop/Desktop) will be replaced by one new digital format that can be used on any digital device. From this date onwards, you can request the new digital formats of EQ-5D via the online registration form. Requested EQ-5D versions will be delivered via the new EuroQol Customer Portal. With the introduction of the new digital EQ-5D format, an updated version of the User License Policy will come into effect as of 6 April 2022 – see here [2]. * For commercial customers, a new license fee structure is introduced for the new digital EQ-5D format. * For non-commercial customers interested in collecting data digitally on an unsupported platform, the Fast Track – Digital registration route is introduced; see here [3] for more information. As part of the introduction of the new digital format, we are rolling out a library of EQ-5D Representations, which consists of EuroQol Office–approved EQ-5D screenshots of the new digital EQ-5D versions. The library consists of EQ-5D-3L, EQ-5D-5L, and EQ-5D-Y Representations of all available languages. Representations from this library will be made available to registered customers for all requested EQ-5D versions and languages via our EuroQol Customer Portal, together with the requested EQ-5D labels and EuroQol’s Digital Representation Design Guidelines. The EuroQol Office–approved Representations will enable customers and vendors to check that their digital implementation of EQ-5D conforms to EuroQol’s Digital Representation Design Guidelines. Moreover, as we are providing these Representations for all available languages, customers can also verify the correct placement of all EQ-5D labels. This means that from 6 April 2022, customers will be solely responsible for checking the correctness of all digital EQ-5D implementations. Screenshot review by the EuroQol Office team will no longer be mandatory. However, as a service, the Office team will continue to do screenshot reviews on request. Lastly, the EuroQol Research Foundation will continue with making EQ-5D available free for non-commercial use, after registration. As screenshot review is no longer required, a screenshot review fee will no longer be charged to non-commercial customers who collect data on unsupported digital platforms (i.e. on platforms other than REDCap, LimeSurvey, Qualtrics, or Castor EDC); see here [3] for more information. For more information and FAQs, please see here [3]. If you have any questions, please contact the EuroQol Office at digitaldatacollection@euroqol.org. Best wishes, Bernhard Slaap. PhD Executive Director EuroQol Research Foundation [1] https://mailchi.mp/euroqol/switch-to-a-universal-digital-format-14921174 or https://web.archive.org/web/20240328124540/https://mailchi.mp/euroqol/switch-to-a-universal-digital-format-14921174 [2] https://web.archive.org/web/20220809230231/https://euroqol.org/wp-content/uploads/2022/03/EQ-5D-User-License-Policy-06APR2022.pdf [3] https://web.archive.org/web/20220517170036/https://euroqol.org/support/digital-data-collection/